Saturday, October 6, 2012

Twelve Day Attack but I'm fighting back!


Road to a Lupus Cure


Wow the last month has been CRAZY!  I started the school year AMAZING...feeling good and honestly reaching students and families in big ways.  I even had opportunity to witness to families and invite them to my place of worship...and they came!  Can I get an Amen?!   Then my co-worker began coming to church with me and loving it and rededicated her life...YES Praise Jesus!  

I decided God really wanted more from me and wanted to take me deeper in relationship with him so I signed up to take a Fire Starters Course.  Good stuff even though I only made two classes before things took a turn and the enemy started his attack. 

First I get a call back from my annual mammogram that I needed to return.  No big deal, this has happened before.  I figure an easy 20 minute appointment in and out.  So I take my son (as we are having a son & mom day-movies, lunch, and mammogram..lol).   Well, I arrive and I get strange news there are three areas of concern.  The repeat the mammogram and then send me to wait in a room.  Then call me to see the Radiologist for a sonogram-she sees more and is "concerned" so she sends me back to the little room.  By this point....I'm a little "concerned"  and I begin to pray, "Father I know you got me on this one but I just need a little reassurance right now. Amen"   I look in the corner of the wall as I am waiting in my lovely hospital gown in this booth and what do I see but these words written in ink "God loves you so much" I started to grin from ear to ear and praise my Jesus...he knew what I needed right then and he sent it.  I love those little blessings.  The mammotech finally came to retrieve me and looked at me with a puzzled look when I told her about the little note on the wall.  We preceded back to her room for yet another test and I finally told I need to consult with a surgeon for one of the areas and the other two need biopsies.  On the way out I go back to my booth to put my shirt back on and look for my love note and it isn't there!  Now some of you may think I imagined it but the rest of you know as I know God knew in that moment I needed to see those words so I did....enough said no more explanation needed. 

So I go back to work that Monday and go on about life and attempt to set-up follow-up appointments for  the biopsies.  But, because my day was so busy with lessons and meetings I kept playing phone tag with the scheduler.   Tuesday was equally as hectic with classes, meetings and phone calls.  As the day came to a close I was getting ready to go to the staff party to celebrate a dear friend that has moved to a new position.  Before I knew what hit me....I had the most intense pain in my abdomen....doubled over I continued to push my cart up the hallway towards the restroom.  Every restroom I get to is occupied (not uncommon directly after school as teachers have to wait until the students leave)  finally I have the office open the clinic restroom and I begin to throw up.  (TMI-I know but important for the story line).  So I clean up and announce that I won't be coming to the party after all because I not feeling well.   By the time I get to my office I am doubled over crying on the floor.  I call my mom to pick me up and drive me to the ER. 

Once at the ER the staff begins a work up for kidney stones.  Meanwhile, I am in the most intense pain I have EVER had in my life.  I am doubled over and standing on my head trying to relieve the pressure on my abdomen.  I'm crying and this is AFTER they have given me pain medication. Three more injections for pain and one for nausea and I stop crying but it still hurts.  I given blood tests and taken to CT for a scan.  It is determined that is not my kidneys after all but my pancreas, causing acute pancretitis (WORST pain you will ever feel according to every doctor I saw and I definitely agree)!  I am admitted to the hospital and put on IV for fluids and pain medication to maintain. 

Well for the next  two weeks Lupus continues to be hard at work attacking my body first my pancreas then I come home from the hospital for my 45th bday still so sick that I can't eat or stay out of bed.  Needless to say was back in the hospital by Monday afternoon to receive IV fluids and further testing and treatment.  Five more days of poking, prodding, puking and pain all to find out there is no pill or cure and I have to "learn to live with it."  They decide after further testing it is IBS (irritable bowel Syndrome) most likely brought on by my pancretitis.  The doctor says there is no cure only treatment for the symptoms.  Which means I still can NOT eat.  Every time I eat even a cracker I get intense Stomach pain and nausea and vomiting or must make a mad dash to the bathroom for the "other" problem. I have attempted to  eat only bland foods, only liquid diet, only one meal a day or even small meals often.  All with the same result PAIN and puking. 
I'm sure there are others out that have experienced these problems and can provide advice that quite honestly medical professionals can't.  If they don't make a pill for it or have a surgery than there is nothing than can do.  If so I would love to hear from you and what you to do to manage your symptoms.

I am a firm believer in healing power of pray and that miracles happen every day.  I am believing that Jesus will heal me.  Please join me in this prayer and believe with me that Lupus has no hold on me and that the healing power of Jesus Christ will win over all!    http://lfa-inc.blogspot.com/

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